Hope Byrnes, Macquarie Pass, NSW— Hope Byrnes passed away after a long and courageous battle with Susac Syndrome, a rare and debilitating disease. Diagnosed in 2021 after the birth of her son Flynn, Hope’s condition progressively worsened. Despite the challenges, she remained a vibrant and compassionate individual, always there for her family and friends when they needed her most.
Hope’s condition, an autoimmune disorder that attacks the blood vessels supplying the brain, retina, and inner ear, left her with severe impairments. A month ago, she was able to walk and talk, but in recent weeks, she became unable to perform basic tasks or communicate. On December 17, 2024, Hope was deemed terminal, and her family was advised to spend precious time with her. It was expected that she would only have a few weeks left.
Her family, especially her father Kaya Somerville, has organized a fundraiser to ensure that Hope receives the beautiful send-off she deserves. This unexpected loss has left them in a difficult position, and they are reaching out to the community for support. The GoFundMe campaign is currently targeting a goal of $18,000 AUD to cover funeral expenses and help them during this challenging time.
Hope was described as bubbly, full of life, and always ready to offer support to others. Her presence in the lives of those around her will be deeply missed.
Our hearts go out to her family and loved ones during this incredibly tough time.
We are deeply saddened to learn of Hope Byrnes’ passing. Our thoughts and prayers are with you and your family during this difficult time.
Short Summary of Hope Byrnes
Aspect | Details |
---|---|
Name | Hope Byrnes |
Date of Passing | December 2024 |
Fundraiser Created By | Kaya Somerville |
Goal Amount | $18,000 AUD |
Location | Macquarie Pass, NSW |
Purpose | Funeral expenses and support for family |
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